News & Events

Independent Living Movement Ireland (ILMI) launched our #DeclarationofIndependence video campaign on Sunday 5th May as part of European Day on Independent Living. The short film features twenty disabled activists from across the country talking about the need for disabled people to work together and for issues disabled people face to be seen as equality and human rights issues.

“Our video is about changing the conversation in Ireland and Europe about disability. Our philosophy as ILMI can be best summed up as “Nothing About Us Without Us” and “Rights Not Charity”. What the Declaration of Independence is about is getting a clear message from disability activists of the type of Ireland we want to create. We want this to be a powerful message to get more disabled people involved and for us to be strong together to demand our rights”, said Sarah Fitzgerald, ILMI secretary who is a writer and scripted the video.

“We as Independent Living Movement Ireland want to bring about a more inclusive society. The only way this can happen is if disabled people work collectively together. The first step is for disabled people to recognise that the issues facing disabled people are equality and human right issues. We need disabled people to recognise that change is possible, but we need people to be active, to let policy makers and politicians know what we want and not be afraid to demand our rights” said Shelly Gaynor, Chairperson of ILMI.

“The video is all about getting disabled people to recognise that the way society is structured is what prevents our involvement. We need people to realise that it is not okay that our transport system isn’t fully accessible. We need non-disabled people to realise that Ireland can and should be a place where disabled people are able to do the day to day things that every takes for granted.” added Ms Fitzgerald.

In 2014 the European Network on Independent Living (ENIL) declared May 5th as the European Day on Independent Living as a day of celebration to coordinate European-wide events and actions in the name of Independent Living. It aims to bring together disabled people and their allies throughout Europe together to raise awareness of Independent Living and to show the wider public that disabled people we are proud, strong and visible!

“As a founding member of ENIL, it is really important for ILMI to be involved in this European action. Real independent living is about people being heard, their voices respected and their choices honored. The message is so clear and powerful: disabled people are the experts in their lives and for too long their voice has not being listened to in Ireland or in Europe. We hope that this video encourages more disabled people to become involved in ILMI and affect policy change by working collectively and making Ireland a more inclusive society”, said Damien Walshe, ILMI CEO.

The video can be viewed on the ILMI website at https://ilmi.ie/ilmi-video-resources/ or Youtube

https://youtu.be/68CF8q8tuXM

Independent Living Movement Ireland (ILMI) was established as CIL in 1992 by and for disabled people. Its aim was to ensure that disabled people achieved Independent Living, choice and control over their lives and full participation in society as equal citizens.

We are a campaigning, national representative organisation that promotes the philosophy of independent living and to build an inclusive society. Central to the way we work is to ensure that policy decisions that impact on the lives of disabled people have to be directly influenced by those whose lives are directly affected.

Our philosophy can be summed up as: ‘Nothing about us without us!’ and ‘Rights Not Charity’.

Our vision is an Ireland where disabled persons have freedom, choice and control over all aspects of their lives and can fully participate in an inclusive society as equals. Visit www.ilmi.ie for more details or info@ilmi.ie

 

Carmichael presents
The Dublin May Choral Concert 2019

Will Todd: Mass in Blue

An upbeat jazz setting of the Latin mass

and Pater Noster by Igor Stravinsky

Featuring:

  • Goethe Choir
  • Conductor: John Dexter
  • Saint Patrick’s Cathedral Choir Choristers
  • Conductor: Stuart Nicholson
  • Soprano: Hilary Cronin
  • Saxophone: Patrice Brun
  • And the Will Todd Trio

When: 8pm on Saturday, 25th May 2019
Where: Saint Patrick’s Cathedral Dublin

Book Tickets

Booking for this event has now closed. Tickets will definitely be on sale at the venue.

Discover more about the inspiring work of our resident member organisations, their impact and the difference they make to communities across the country. Our featured story is Heart Children Ireland.

www.heartchildren.ie

Heart Children Ireland is a support group for parents and families of children with a Congenital Heart Disorder(CHD).

Who we are and what we do:

  • We are a nationwide organisation with over 1,000 member families.
  • We were founded in 1990 and are a registered charity.
  • We are a completely voluntary group and currently receive no government funding.
  • We depend on our own fundraising and donations from individuals and businesses.
  • In the first 28 years of our existence, we raised over €2.5 million for the Children’s Heart Centre at Our Lady’s Children’s Hospital, Crumlin.
  • IT IS FREE TO JOIN HEART CHILDREN IRELAND- you are welcome to contact us!

We offer support in many ways. Here are some examples:

  1. We hold social events where families can meet, for example, coffee mornings, parties and picnics.
  2. We hold information days for families around the country focusing on cardiac topics of interest.
  3. We provide a Family Psychology Support Service free to all members. Individuals of all ages with congenital heart conditions, family members and bereaved families access this service.
  4. We hold an annual conference with keynote speakers from the world of congenital cardiology.
  5. We have purchased equipment for both the Children’s Heart Centre at Our Lady’s Children’s Hospital and the Adult Congenital Unit at The Mater Hospital. For example, we purchased the first ECMO machine for the Intensive Care Unit at Our Lady’s Children’s Hospital.  This machine is saving lives on a daily basis.
  6. We work hard to raise awareness of the issues relevant to our members by representing them in relevant forums.
  7. We have provided a dedicated clinic room for the Adult Congenital Unit at the Mater Hospital to facilitate our teenagers transferring from Our Lady’s Children’s Hospital.
  8. Through our News Briefs, we provide updates about Heart Children Ireland services and supports, as well as relevant information about health service matters.
  9. We are privileged to manage The Blue Ribbon Fund on behalf of the Moran family. This fund provides assistance to families on the transplant journey with their child. This fund is in memory of Elaine Moran.
  10. Margaret, CEO, and Linda, Administrator, provide a listening ear should you wish to contact them.

Help us to continue to support our families, children and adults. To support Heart Children Ireland, just click on the “donate now” button on the website www.heartchildren.ie.