28 April 2022
May is Huntington’s disease Awareness Month, and here at Carmichael we are delighted to shine a light on the string of events for our The Huntington’s Disease Association of Ireland (HDAI).
Each May the Huntington’s community comes together to raise awareness for the disease, and equally tell the world of the tireless work carried out by the organisation, the HDAI.
This year will see the national organisations for Huntington’s awareness for Ireland, England, Northern Ireland, Scotland and Wales join together as the Huntington’s Disease Alliance UK and Ireland.
This amalgamation will see each organisation share their stories and contributions for the ‘Family Matters’ campaign. Family Matters will work hard throughout May to raise awareness in a variety of ways, including:
- Launch of a campaign website
- The Living History project
- Stories and short films featuring interviews with Huntington’s disease families
- Surveys to gain important data from the Huntington’s community
- Ireland Specific Survey Results
- A large social media campaign
- Sharing information with decision-makers
- Celebrity ambassadors
- Raising awareness by sharing information with the press
The HDAI are starting off the awareness month early, on April 30 with a fundraiser walk in the Phoenix Park. They are asking all those taking part to meet at the Papal Cross at 10am. This will be a remembrance walk for the extended Porter family will walk in memory of Fran and Tony and all who have lost their lives to Huntington’s disease.
Another aspect for the awareness month is ‘LightItUp4HD’, where the community are asking different buildings to light up purple on May 7, to shine a light on the disease, the community, and the efforts of the organisations which look to help those in need.
The Mansion House, 3Arena, The Convention Centre Dublin, County Buildings, Tralee, Killarney Town Hall, Dublin City Council buildings, Carmichael Centre, Rock of Cashel, Bloomfield Hospital, Life Pharmacy Ballsbridge, Christchurch Cathedral, Donegal County Council, Dublin City Council, Kerry County Council and Kildare County Council are among the buildings and organisations who have kindly supported our Light Up campaign over the years.
Huntington’s disease (HD) is a neurological illness caused by an expanded gene in your DNA. The faulty HD gene causes cells in parts of your brain to gradually malfunction and die. As brain cells die, you will experience changes with your movement, thinking and emotions.