4 March 2020
Carmichael are delighted to raise awareness for Neurofibromatosis (NF) for the month of May. May is the dedicated month for raising awareness for Neurofibromatosis, a rare genetic condition.
May 17 is world Neurofibromatosis awareness day, and with The Neurofibromatosis (NF) Association of Ireland being a resident Carmichael organisation, we want to utilise our Spotlight section here to raise awareness for the condition and with that, the fantastic work they carry out.
NF is a rare genetic disorder that affects more than 2,500 children and adults living in Ireland and 2 million people worldwide. NF causes tumours to grow on nerves throughout the body, and may cause blindness, deafness, bone abnormalities, disfigurement, learning disabilities, disabling pain and cancer.
NF Ireland aim to be a voice for NF patients and their families. Their primary aim is to inform sufferers and their families of the disorder, supporting them and letting them know they are not alone with the condition. The organisation provide support and information on Neurofibromatosis to patients, families, and healthcare providers.
NF Ireland provide information for concerned patients and parents alike. They have created a community to bring together those affected. Like many small charitable organisations, they face great difficulties both financially, as well as maintaining a strong and thorough voice needed for those affected.
The worldwide NF community are recognizing May 17th as World NF Awareness Day and they’re hoping to raise awareness for this genetic disorder that currently has no cure. Over the years, hundreds of landmarks around the world have helped them Shine a Light on NF.
This year the following buildings will be light up in Blue or Blue and Green for our association, the Mansion House and Convention Centre in Dublin, Kilkenny Castle, Bunratty Castle in Co Clare and King John’s Castle in Limerick.